Thursday, February 21, 2013

Little Tears


February 21, 2013                                                                           9:11 a.m

Losing your daughter after just six days of having her is heartbreaking.  Planning a funeral for a baby is unimaginable.  Living the rest of your life feeling like a gigantic piece of your heart is forever lost is, at times, more than you can handle.  But this reality does not end there.  Nope.  There’s more.

Like when your loving, kind, compassionate, heartbroken seven year old son comes to you before he goes to bed and asks if he can ask you a question.  “Sure,” you say, “you can ask me anything.  What’s on your mind?”

“Do you think Brynna knew us?” he asks.  “Do you think she knew us, like that I am her brother and you and Dad are her parents?”

You take a moment, trying to figure out the best way to explain to this sweet boy, what you feel in your own heart is true.  You ask him to close his eyes.  He does.  You say, “I am talking to you now and you can’t see me, but do you know who I am?”

“Yes,” he says.  “By the sound of your voice.”

“Right,” you say. “Exactly.  And when Brynna was growing inside my tummy for 41 weeks, she heard all of us.  She heard me, she heard Daddy, and she heard all of her brothers.  And then when she was born, and even though she couldn’t open her eyes, she could still hear us, and she knew when we were near her.  Each time we would talk to her or rub her back or hold her, her heart rate would go a little bit faster and so would her breathing, like yours does when you’re excited…so I believe very much that she knew who we were.”

“Oh,” he says.  Then his eyes well up with un-spilled tears and he says, “I am just worried that dying hurts, and I really don’t want to die, and I don’t want anyone else in our family to die. And there is always a chance Mom, like when you leave and go to work each day, there is always a chance that you might not come back.”

Then he cries.

And you fight with everything you’ve got left inside, to try to sum up the courage and the knowledge and the wherewithal to answer this.  Because you can’t tell this sweet boy that “nobody else will ever die” and that “everything is going to be fine”.  Not really.  Not honestly.  Because he already knows that life is not certain like that.  The blessing of naivety has been stripped away already, and he is only seven.

So you say to him, “that is so much to be thinking about and that must be really scary.  I am so glad you came to me to talk about this.  Your Daddy and I have the same fears and the same heartache and we are adults and it scares us, I can’t imagine what it must be like for you.  You will always be taken care of, you will never, ever be left alone.  No matter what happens in this life, your Dad and I will always make sure you are safe and loved.”

And he says, “I just really miss her, and I know I will see her again some day. But I really want to see her now.  I want to have a long, happy life with her here.”

And your heart breaks all over again.  Literally, you can feel it crack in your chest.  Because this is not right.  It is not right that a seven year old boy has to suffer like this.  Miss his sister like this.  It is too much.

But all you can do is hug him close and offer that he can cuddle with her blanket if he wants.  He says, “yes please” and then you continue to hold him while he cries.  And you tell him it’s okay to cry, it’s going to feel better to get it out…

He asks if he can sleep in your bed with you and you say, “of course.”  You tell him that sometimes listening to music helps you go to sleep and he says he, “would like to try that, and, do you have that song?”  “You know, the one that the little girl sang at the cemetery that time when we went to see Brynn’s name etched in stone?”

“Angels Among Us?” you ask. 

“Yes, that one.  Do you have that one Mom?”

You do.  So you call it up on your ipod, and you push play, all the while calling out to your daughter, begging that she comfort her brother somehow. 

As the song begins, his face relaxes and his tears slow.  His breathing evens out and his body becomes less tense.  Eventually, his eyes close and you can tell he is drifting off to sleep.  You kiss him on the forehead and wish him sweet dreams, and as you turn over to go to sleep, in a sleepy voice he says, “it’s okay Mom, Brynn just touched me on my toes and said she loves me and I’ll see her again someday.”

And your heart melts.  And you smile through your tears.

Friday, February 8, 2013

Dear Steven


February 8, 2013                                                                                         2:37 pm

Dear Steven,

I love you.  I am so sorry this is our reality.  I am so sorry we are on this earth without our beautiful little girl.  My heart broke the day she died, and then it broke all over again when I watched your heart break as well.

You are an amazing man! 

I won’t tell you, “You’re so strong, and I don’t have any idea how you’re doing all this,” because I know you don’t have a choice.  What’s the alternative right?  We can’t just lay down forever.  The boys need us…life needs us.  But I will tell you, I will tell you over and over again, that you are an amazing man!

For more than half my life now, you have been here with me.  I have known you longer than I haven’t known you.  I have grown up with, and continue to grow up, with you. 


Our road has not been smooth.  It has been bumpy, winding, and at times such as now, rather dark and unsure.  But we have walked our road.  And we are walking still.  Together.

I love you.

When Brynn was in the NICU and her future was uncertain, you told me to stop fighting to get back to “what used to be,” and join you in the middle of the pool.  Remember that?  You told me if I kept insisting on getting back to “before,” I would die trying.  Instead, you said, we needed to hold onto each other and tread water in the middle of the deep, dark pool, taking our time to rest and wait. And then, only when WE were ready, we would begin to swim toward our future together, whichever way that was.

Now, somehow 15 ½ months out, we are swimming…

This has, without a doubt, been the most horrific thing either you or I have experienced in our life.  But I am so sincerely thankful that you and I waited for each other in the pool, and continue to swim together toward whatever comes next.

You are an amazing man! 

You are my best, most treasured friend and the most amazing father to our four beautiful children. 

I love you.  I thank you.  I need you.  I want you.  I am proud of you.  I am inspired by you. 

I am so sorry we have a reason to be on this road, or in this pool, but I am so very thankful to be with you.

You are an amazing man.

Love,
Me

Monday, January 21, 2013

Don't Know Much


January 21, 2013                                                                              11:35 a.m

This pain is awful.  The hold that it takes on your heart is terrifying.  It threatens to shred the person you were and leave you with only a shell of what used to be.  To the outside world, time passes, and you appear whole.  But you are broken inside in a way you never knew was possible, seemingly beyond repair.  And you work every moment of every day to try to reassemble the parts of you.

The others carry on.  Life is light for them.  Happy moments are just that…happy. 

But it seems now, that your moments will no longer be 100% happy.  Maybe 50%.  Maybe on a “great day” 98%.  But either way, there is ALWAYS something missing.  Always something detracting from the honest to God, no holds barred happiness….

She is gone.

Oh my God, how unfair this all seems!  Why do we have to live a reality such as this?  Why do I have to wake up every day and remember that she is gone?  Why does my heart have to break over and over and over again, each and every day?

What did we do to deserve this?

Don’t answer that. 

I know that we did nothing.

I know that we just got dealt a really, really shitty hand, and now it is our job to survive it.

But there are days when I don’t want to survive it.  It is such gruesome work to wake up each day and walk through this life when one of your children is not here to hold your hand and walk with you.

I am not fighting the “healing” although I feel that is such an inappropriate word.  I am allowing myself to feel what I feel in each passing moment and recognize that they’re all part of the “process” (another silly word). 

I do smile.  I do laugh.  I do have fun. 

But I miss her while I am doing all of those.  Every time.

This coming Saturday, she would have been 15 months. 

There are so many things I would have discovered about her by now, had things been different.  I would know for sure by now what color her eyes would be.  I would know how her cry sounded.  How her laugh sounded.  What her smile looked like.  Whether or not she was a thumb/finger sucker like her mom. 

And it makes me mad because I am so sad that I only know what she looked like when she was sleeping.  I don’t know anything else.  I don’t know anything about my daughter. 

That is so hard to live with.

You Are My Sunshine


January 21, 2013                                                                                          10:58 a.m


Dear Brynna,

Oh my goodness.  I miss you so much today.  My heart is heavy and my eyes have been spilling over with bitter tears.

I feel tired and I feel defeated.  I feel lost and I feel alone.  I feel confused and I feel shaken.  Yet, on goes the world…

“I woke up and I wished that I was dead, with an aching in my head.
I lay motionless in bed
The thought of you and where you’ve gone,
And the world spins madly on…”

I wish I’d had another day, another hour, oh God, just another minute, with you my sweet, sweet girl. 

“You are my sunshine, my only sunshine,
You make me happy when skies are gray,
You'll never know dear, how much I love you,
Please don’t take my sunshine away.

The other night, dear, as I lay sleeping,
I dreamed I held you in my arms.
When I awoke, dear, I was mistaken,
So I hung my head, and I cried.”

It’s so strange the connection I have to that song…

When I was a little girl and getting ready to enter preschool when summer ended, I remember laying in bed with my mom in the morning and we were singing songs together.  We started singing “You Are My Sunshine” and by the time we got to the last verse, I was crying.  Little, four year old me, was crying and my mom, your grandma, asked me why.  I remember telling her that I was so sad for the person that was dreaming of the one they loved so much only to wake up and remember that that person wasn’t there.

How I could relate to that pain at four years old, I don’t know.  Unless somehow, in some way, I knew already that that would be my pain… someday.

And then I grew up.  And then you came.  And then you left.  And then I dreamed of you.  And then I woke up, and realized I was mistaken.  And I hung my head and I cried.

I love you Brynna.  I love you so very, very much. 

I just wanted to tell you that.

Love,
Momma

Tuesday, January 8, 2013

Hmmmm.....

Hmmmm....

Somehow the holiday season is now behind us...

I'm not even sure exactly what it is I need to write about.  I haven't written for quite some time and I think it's because I'm feeling a little bit like "what is there to say that has not already been said?"

We've been doing this "new life" now for nearly 14 1/2 months.  Two Thanksgivings, two Christmases, two New Year's... and yet so very many more to go.

We are getting more used to, or maybe just more accepting of, the fact that in our life, from here on out, there will be sadness and longing for a different reality, but it will just have to coexist with what "is" and the happiness that will come from what we still have.

People who know me, know that when they see me and ask, "How are you doing?' will very likely get my new (14 month old), standard response of, "Oh, you know, just getting by.  Doing the best we can.  One foot in front of the other and all that."  No longer in my life does it come naturally to respond, "Great, how 'bout you?"

I have always been someone that finds it impossible to hide my emotion or mask how I'm truly feeling, and I have made it a habit for the 33 years I've been on this earth to be honest in all things (or at least do my best to try).

I cannot approach this any differently.  I love my daughter.  I miss my daughter.  My heart is broken in a way I never realized was possible as a result of her death.  (Did you know your heart can be broken and "whole" at the same time?  It's really quite a curious reality).  I cannot tell people when they ask that I am "doing great" because....well, ...because I'm not.

I don't know if I ever will be.

Don't misunderstand me, there are great moments, even days in my life, but I am not great.  I am not whole.  Not really.

It's been said that when you have children it's as if you are watching your heart walk around outside your body.  I totally get that.  I have three gigantic pieces of my heart walking (running and jumping more often) around me every day when I look at the boys.  But that other part, the other gigantic section, I can't see anymore.  It's walking (soaring probably) around in a place I can only imagine.  And that leaves a hole.

I continue to allow the sorrow to come as it feels necessary, and I continue to do my best to put the pieces of myself back together.  It's a slow, painful, sometimes very fatiguing process, but I do it.

"You know, getting by.  Doing the best I can.  One foot in front of the other and all that."